Associate Director, Data Partnerships - Rare Disease

About the role

The Associate Director, Data Partnerships - Rare Disease sits in the Data Innovation, Partnerships and Products team, which uses data and advanced analytics to improve decision-making at Novartis. The role establishes, manages and strengthens rare disease-focused data partnerships that support the US Commercial organization and advance business needs across rare disease brands, customer engagement, patient access, patient finding and field execution. It works 20% of the time in travel and is open to remote work anywhere in the U.S., though relocation is not provided.

Key responsibilities

• Implement the rare disease data partnership strategy, identifying critical data needs across US Commercial brands, functions and use cases.
• Establish, manage and strengthen partnerships with external data providers, platforms and vendors, and guide decisions on their capabilities, limitations and fit-for-purpose use cases.
• Monitor data quality, security, privacy and compliance, and oversee data-sharing agreements, governance and data stewardship practices.
• Track partnerships and spend, report performance metrics to senior leadership and identify efficiency and governance improvements.
• Work with vendors, analytics teams, field enablement, access, patient services and other teams to resolve data quality issues and advise on data availability, interpretation and use.

Required profile

• Bachelor's or Master's degree in Information Management, Computer Science, Business Administration or a related field.
• At least 6 years of experience establishing and managing data partnerships, with a strong focus on rare disease, healthcare data, data governance or data management.
• Prior experience with a data vendor, data provider, healthcare data platform or analytics organization is strongly preferred.
• Deep understanding of rare disease data assets, including patient identification, data coverage, refresh cadence, linkage, quality and business use cases.
• Familiarity with healthcare data privacy, security, quality and compliance regulations.

Required skills

• Expert knowledge of data partnership principles, frameworks and best practices.
• Leadership, stakeholder management, communication and change management skills.
• Analytical and problem-solving skills, including assessing vendor data quality and managing data partnership risks.
• Highly desirable: experience with IQVIA, Komodo, MMIT, Symphony, Definitive Healthcare, Veeva, claims/EHR data providers, patient services or specialty pharmacy data.

What we offer

• Expected salary of $145,600 to $270,400 per year, with a performance-based cash incentive and possible annual equity awards.
• Benefits including health, life and disability insurance, a 401(k) with company contribution and match, and a time-off package.